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How to know if you have sjogren's syndrome Videos
- 1. Sjögren's syndrome
- 2. Sjogren's: A Place to Begin - Part 1: What is Sjogren's Syndrome?
- 3. Life update: Sjogren's Syndrome
- 4. Venus Williams US Open 2011: Tennis Star Explains Leaving Tournament due to Sjogren's Syndrome
- 5. Sjogren's Syndrome Awareness Video
- 6. 10 Major Symptoms Of Sjogren's Syndrome
- 7. The Best Natural Remedy for Sjogren's Syndrome
- 8. Overview of Sjogren’s Syndrome
Sjögren's syndrome
Andras Fazakas Sjögren's syndrome A chronic systemic inflammatory autoimmune disease that can cause death if : pulmonary infection, a lymphoma, or renal ...
User Comments
Jennifer Leonard
commented
on 31 Oct 2015
SS is no cake walk. Thank you for the video information that can be shared
with family and friends to help them understand. I was diagnosed with Lupus
after 9 years of random health crisis and by then I also had Sjogrens
Syndrome among a lot of other DX.. Early on I was told it was just dry eyes
and mouth but that is incorrect. There is joint pain, fatigue, fogs and
heartblock in your newborn. I had to have both of my shoulders repaired
because the synovial fluid dried up and they scarred in place. The most
frustrating part of my experience with auto immune disease is that doctors,
even specialists, do not seem to know much about the disease (SS or Lupus)
or its effects on your body and so your told to suck it up. (USA)
Jennifer Leonard
commented
on 22 Nov 2015
That is very true that doctors are human like all of us and the field is intimidating. We need to work as a team with our doctors but its hard because often if you know anything about your disease they feel intimidated more when we just want to work toward solutions and figure out treatment options. The online support groups are very good and many many people are sharing ideas and experiences there which is supportive. There is so much overlap between diseases and I am proof of that both my symptoms and multiple ANA patterns. And even they can overlap. I hope in the future research is fruitful to help people with these and other chronic diseases. I just read a brilliant article about :The Mycotoxin Connection: Uric Acid, Gout, RA & Other Degenerative Disease. Makes a LOT of sense. Perhaps a clue we havent considered.
Andras Fazakas
commented
on 01 Nov 2015
+Jennifer Leonard Hello Jennifer, I respect that you took your time and shared your story with us! Yes you are correct that many doctors are unaware of the symptoms and treatment of autoimmune diseases. Immunology is such a complex science that many doctors are intimidated by it, and rather choose another field. Even immunology specialists have hard time figuring out which autoimmune disease we are dealing with. This is why it's so important to share ideas with other people with the help of internet. A doctor is not a GOD! A doctor is a human like anybody else. As we all know, memory have its limits. When a doctor deals with thousands of diseases it becomes hard to differentiate between them. I wish you all the best in life!
harith husam
commented
on 29 Aug 2015
What about immunosuppressive drugs, are they helpful in such situation
Ellen Cox
commented
on 13 Dec 2015
+harith husam I also have Lupus, so the only one that has helped me is Cellcept, which is mainly used for Kidney transplant patients.
Andras Fazakas
commented
on 03 Sep 2015
+harith husam In patients with major organ involvement, such as lymphocytic interstitial lung disease or in vasculitis, glucocorticoids and cyclophosphamide can be used
mountaingirl1995
commented
on 01 Aug 2015
This just makes me want to give up. Lupus for 30 years, fibromyalgia for 10
and not Sjorgen's.And, a staph infection in my parotid gland for the past
two years. I feel like my body wants to destroy itself. I am so very
scared. Has anyone been here?
mountaingirl1995
commented
on 14 Dec 2015
God bless you as well! I think I can say we understand what each other's lives are like. I am so overwhelmed right now...just trying to get to the next dr. appt. But, I have found that my sense of humor has been the most helpful thing I have at the moment:) In my better moments, I try to use gratitude to fill my heart, rather than all of the darker feelings. It is still a hard road to walk. And the holidays are hard, too. I will add you to my prayer list and wish you a joyful holiday season!!
Ellen Cox
commented
on 13 Dec 2015
+mountaingirl1995 I also have Sjogren's along with Lupus, RA, ankylosing spondylitis and mixed connective disorder as well as treatment resistant depression! All of this has taken my life away from me forcing me to try to find some n way to live and get through everyday. God Bless You!!!
Na'amah yisrael
commented
on 07 Apr 2015
Great video, i just did my blood test, waiting on results mean while i have
to do vision and dentist test, and ya the model looks horrible, lol
Na'amah yisrael
commented
on 22 Jun 2015
Yes the ANA test, sorry i took so long to responsed back, i got my test back and i have, FULL BLOWN, its been crazy for me, i needed to file for FMLA on my job because i keep getting flare ups all the time, i got medicine for it now but the side affects is very bad the medication name is hydroxychloroquine twice a day, if you can update me and let ne know what happen to you
analyticalw
commented
on 25 May 2015
+Na'amah Alexander I'm due to take tests for Sjogren's but I'm really scared. My ophthalmologist and optometrist both think I have it and my ER visit last week had the ER doctor convinced something inflammatory was going on and asked me if I was tested for Sjogren's. What blood test did you have done, the ANA blood test?
lucy bond
commented
on 28 Feb 2015
Excellent video. Just started Plaquenil for inflammation that the doctors
do not know what is causing it.(the inflammation). I am terrified of
pharmaceutical drugs and their potential ability to do more harm to the
body.I believe they just treat the symptoms but do not treat the problem.
However, because of the inflammation, I am at high risk for stroke and
heart attack so I feel----pardon the language-- "screwed". I wish that
there was a natural/holistic way to treat inflammation rather than having
to take those pills. Incidentally, I asked my doctor to do the test for
inflammation because I read about it being the cause of many illnesses so
no telling how long I've been walking around with this inflammation. It
maybe the cause of my arthritis, depression, nerve pain in feet(?),
and roaming pain in my body. One question I would have is why-----do I
regularly have almost a burning sensation on my tongue? I know it sounds
weird but there must be a reason for that. Does that mean that your too
acidic? and does keeping your body in an "alkaline" state reduce
inflammation?
capricornblue
commented
on 23 Jun 2015
+lucy bond Your question is the same as what I'm thinking... I'll ask my doctor next month on my appointment. I also get 4 types of supplements (eye vitamins, vitamin D3, calcium, and food supplement) beside plaquenil, and diacerein for joint pain. Those supplements done very well for me, but yeah I agree with Chrissy controlling what we eat is very important... But sometimes it is very hard to start lol. Expose yourself to direct sunlight for around 15 minutes per day is a good way to get vitamin D (I heard lack of vitamin D can cause depression), so I'll try to keep this behavior after I finished with my supplement to maintain my body's need (it is also a cheaper way than buying supplement lol). Still have lot more works to do, but hey, lets solve it one by one :)
chrissy Q
commented
on 13 May 2015
+lucy bond Best to reduce inflammation is to have a diet that is non inflammatory just google it ,,,As SS persons we all have inflammation I do not take any medication for SS and have been diagnosed 21 years I was 31 I am 52 now I think that diet has been very,,, very important for me and has helped me a lot through the years I believe that medication over time makes SS worse but that is only my opinion, Try everything and anything natural first before going to medication
Sjogren's: A Place to Begin - Part 1: What is Sjogren's Syndrome?
Sjogren's syndrome is a chronic autoimmune disease in which people's white blood cells attack their moisture-producing glands. Today, as many as four million ...
User Comments
awkward doll
commented
on 21 Mar 2015
I'm almost 16, I think I have this? Kinda scared.
My Labradors
commented
on 04 Apr 2015
+awkward doll I was just told I have it. Get to a top eye doc that deals with it. Mine was the one that realized it after I went from not one cavity to 11 implants with 8 more to be done in 10 years and a severe corneal abrasion both from dry eye and dry mouth. Read the Mayo Clinic site about Sjogren's, hopefully you don't have it as most women who get it are 40 or over. Get a Dr. who knows what they're doing, an immunologist/allergist or eye doctor well versed in it. Won't it be great to find out at your age it's highly unlikely? Best health wishes.
Life update: Sjogren's Syndrome
Sigh, yup. such is life. Sorry about the weird lighting and focusing my camera was doing.
User Comments
S Hasan
commented
on 01 Nov 2015
Just out of curiosity, how are your vitamin D levels? Mine were really low
and taking 5000 UI have helped with the dry mouth and fatigue. Also try
omitting gluten and sugar.
Mrs_Paprika
commented
on 02 Nov 2015
+S Hasan Mine aren't great but not super bad either (can you see how pale I am? They're never going to be great haha). But this comment was a good reminder that I need to be taking it again so thank you!
Buddy Buds
commented
on 23 Oct 2015
Hi, thank you for sharing. I have it as well but suffer from a lot of other
things as well. Shortness of breath, stomach problems allergies etc.. How
are you now? Did the Plaquenil help you? I took it as well but had a very
heavy reaction to it so had to stop.. Hope it worked well for you.
Mrs_Paprika
commented
on 23 Oct 2015
+Buddy Buds Oh I'm sorry it didn't work for you! It's really helped me with over all pain and with keeping dryness down. I still have to do various things to stay "normal" but I've very happy with it:)
Viviana Di Carlo
commented
on 21 Aug 2015
Hi, Miss Paprika! I was diagnosed with Sjogren's syndrome a few months ago,
after a couple of years struggling with the symptoms. I really appreciate
your videos. I know you understand what I am going through and it makes me
feel less alone and sad. I hope we can keep in touch. Have a great life!
Big kiss :)
Mrs_Paprika
commented
on 23 Oct 2015
+Viviana Di Carlo I never got a message about this comment, so I'm sorry to reply so late! How are you feeling? Have you found any meds to be helpful?
강한새
commented
on 26 Jul 2015
i have a Sjogrens and fibromyalgia too. I live in South Korea and I'm 25
women. nice too meet you, and find your video clips. thanks.
I diagnosed when I was 18, now I'm 25.. that's really long long times...
In my country, sjogrens is not a serious problems, dr and society. most
people said "you're so fine" "you look so healthy" but pain and fatigue is
real. that's not just go away.
luckily, my friends is so kind, they do understand me.
sometimes I tried too hard and get exhausted, but my friends never hurry
me. they said "get some rest" "you need more rest" "it's not your fault" so
I live really who I am.
Mrs_Paprika
commented
on 26 Jul 2015
thank you for your comment! I'm always curious how other countries view sjogrens. it's so tough when people don't take it seriously but I'm glad you have people that are supportive! are you on any medication for it? I've had a lot of luck with plaquenil, I'm still tired a lot but I feel a bit less worn out and I don't ache as much as I used to.
Venus Williams US Open 2011: Tennis Star Explains Leaving Tournament due to Sjogren's Syndrome
"GMA" Exclusive interview focuses on Venus William's diagnosis of the rare disease that affects 1.3 million people. For more information, click here: ...
User Comments
YuTu13e
commented
on 23 Aug 2015
I just got diagnosed with it, I've been suffering from it for about eight
years now.
Ellen Cox
commented
on 13 Dec 2015
+YuTu13e Me too, I feel your pain, Good luck and God Bless!
Sjogren's Syndrome Awareness Video
My stepdaughter Katie made an awareness video for Sjogren's Syndrome, the 2nd most common rheumatic disease. She did it as her Senior project. I'm so ...
User Comments
Helene dibenedetto
commented
on 17 Apr 2015
the enamel is falling off my teeth. thanks to this.
Mary Ann Christian
commented
on 08 Oct 2015
+Helene dibenedetto - My dentist wrote a letter to my internist, who sent me for a referral to a rheumatologist. My dentist is the one who asked that I be evaluated for Sjogrens, because over the past several years, as my dry mouth has gotten to a ridiculous point where I am drinking a gallon+ of water a day, my teeth have deteriorated to the point that I recently had all six front teeth on the top crowned. Fortunately, he is a very good restorative dentist! But that is exactly what happened to me --- my enamel was falling off. I can relate, and I'm so sorry. It will be a battle from now on.
10 Major Symptoms Of Sjogren's Syndrome
Read More Here //www.natural-homeremedies.com/major-symptoms-of-sjogrens-syndrome/
User Comments
EuphemiaGrubb
commented
on 08 Nov 2015
I can't state enough how helpful it is to be told what I already know. I
can tell there are great minds behind this very informative video...
BLFulle
commented
on 02 May 2015
hope you didn't go to too much trouble making this.
The Best Natural Remedy for Sjogren's Syndrome
Dr. Alexander Shikhman discusses SalivaStim as the best natural remedy for dryness associated with Sjogren's Syndrome. www.glutenfreeremedies.com.
User Comments
KennyD3215
commented
on 14 Nov 2015
Hi, where do you sell this product? and is it available for shipping in
Australia?
KennyD3215
commented
on 12 Dec 2015
Are there any plans to ship to Australia in the future?
ifsmed
commented
on 11 Dec 2015
+KennyD3215 we sell it online //store.ifsmed.com/SalivaStim-p/salivastim.htm, unfortunately we do not ship to Australia.
Overview of Sjogren’s Syndrome
Nearly 4 million individuals in the United States suffer from Sjogren's Syndrome, a difficult autoimmune disorder in which the glands that produce tears and ...
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