Tremia I am one of your new subbies, I feel blessed to have found your
channel. I am going through chemo due to Sarcoidosis and you have blessed
me immensly with your courage and sweet personality. You are in my thoughts
and prayers everyday. Dealing with illness is so difficult and you helping
others to understand what it is like to have an autoimmune disorder, you
are so brave! Thank you for inviting us on your journey! Hugs!!!!! Sabrina
from Florida
Hi Tremia, so sorry about the tooth. Sometimes a root canal can fail or
they missed a canal when they done the job in which it can calsify and then
can start hurting. My sister had a terrible time with root canals but
usually they do take most of the time. Teeth pain can sometimes be the
worst. I so can't wait till all this is over and we can watch you get
better day by day. :D oxox
My teeth are almost see thru now. I've lost 2. I just plan to pull them as
they go. I can't risk having another infection. Hope they just pull yours
so you are not stuck waithing for the chemo. My mom spent 2ooo on one tooth
and still lost it a year later. Your gums might be swollen and the cap is
stabbing it as you bite down. Did u get my package yet?
Tremia, I recently came across your Vlog & have been playing catch up. Your
dedication in getting the word out about Lupus and your courage in dealing
with this terrible disease are inspiring. Please take my thoughts and
prayers with you on this journey and I wish you peace, love & pain free
days :)
@blondiegirl0810 thank you for all your wonderful words....these give me
encouragement to keep on pressing forward. the vlogs give me a definite
sense of accomplishment at the end of the day. God is the One who
encouraged me (told me, LOL) to do these. So it is all done with His love
and guidance.
Your becoming famous, Tremia! That's wonderful! I'm sorry about your tooth.
That's a bummer but it seems to be for the best to have it pulled and you
don't want to have any extra added pain. Hang in there hon. I'm always
thinking about you and praying for you too. *hugs* Susan from Colorado
Geez Tremia I am sorry to hear about the tooth. Hospitals are no great
place to get rest LOL And you had better stay out of twuble :) Don't make
me have to leave OK and come to Chicago! You be good and let them take care
of you! xoxo jan
@babble2leeza I got your package today!!!! I love it all. They ended up not
pulling the tooth because there was no infection. They adjusted the crown
by grinding it down so it doesn't even touch the bottom tooth and it has
helped a lot.
@treappling1 I'm glad u got it. I'm a novice at china painting but think
Your favorite flower turned out great. I put the butterfly with it as a
symbol for lupus. Hope it cheered your day up some considering all the pain
u must be in.
Tremia I continue to post your videos on other sites...but you sure are one
brave woman...we are all behind you wishing you only the best health and
success! Love ya girl! Can't wait to see you if able to...
Im one of the new subbies hehe.. Someone i follow on youtube had liked you
video and thats how i found you... You are one of the strongest women i
have ever seen. I had to sub you!!
@ironbith I can't wait until that big old belly goes down. It is so
uncomfortable. I am so grateful for everyones love and support and I do
what I can with educating about lupus.
@TigerlilyCO2011 tooth is doing better... they adjusted the crown only....
no infection so they did not pull... so I am doing my chemo... thanks for
the hugs from Colorado
@duvessabella thank you for coming over... I try to be strong and I have my
moments of pity party'n which you will most likely see. Thank you for your
wonderful words. ;)
@LovesmyViolet well the tooth drama is all over... no pulling of tooth...
adjusted the crown and it helped quite alot... I got my card today!!!!
thank you. ;)
I'm sorry for your tooth :( I'm glad that Tremija is back together with
chicken (and both are smiling) Thanks for the tour and Congrats on the new
sub.
ME-CVS een niet begrepen ziekte waar steeds meer mensen aan lijden, vooral het onbegrip van mensen die niet bekend zijn met deze ziekte zorgt voor veel ...
Cyclic Vomiting Syndrome, CVS, episode pain oct 2011 3 of 3
Cyclic Vomiting Syndrome, Cvs, pain Oct 2011 at 1:30am. This video, it is calming down. Abort meds worked 85% 3 of 3.
I am now fully convinced that I am suffering from CVS. This is coming up on
4 years of having uncontrollable pain followed and joined by vomiting for
DAYS. I do not eat during these days yet I still continue to vomit
bile/stomach acid. The first few times I went to the local hospital they
gave me morphine or dalaudid via IV as well as zofran and some other meds
for nausea and spasms but only the dalaudid ever helped. They would give
doses and basically just send me on my way after not finding anything
through multiple tests. Blood, urine,CT Scan, ultrasounds what have you.
After the first few times the hospital basically began seeing me as some
drug abuser who was purely seeking drugs. After the second year my
insurance was cancelled and I was forced to deal with it every time on my
own with just time. I didn't have any episodes for about a whole year until
about 2 weeks ago when it returned and since I had insurance I went to the
local hospital again for probably the 10-15th time for this specific
problem. This time I was actually admitted and monitored for about 24 hours
until the episode subsided and they sent me on my way once again. No
diagnosis what so ever...
Zofran & dilaudid together through I.V. is EXACTLY how I am treated in the
Hosp. BUT, I've had more than a few Dr.'s chalk it up to uncontrolled
diabetes & they discharge me saying "Its not our job to control your blood
sugar!". WTF! They completely ignore my other symptoms & that I carry a
Medical Fact sheet in my wallet that is 2 pages long listing all my Meds,
GI Dr. and Pain mgmt Dr. etc. & detailing the fact that I have CVS &
Gastroparesis & even have a GI Pacemaker implanted. All Ignored
Hey bro, hope you feeling well. I have CVS too. My problem is there are
only 2 drs in Florida who specialize and recognize CVs, I'm Tampa, drive to
ft Lauderdale... That's 5 hrs by the way, for the Dr to tell me they made a
mistake and they don't take my insurance. I get treated in hospitals like a
drug seeker. Zofran AND dilaudid together through iv seems to be the only
thing for relief. drs where I live in Tampa won't recognize CVS. I can't
take it anymore. any suggestions? Thanks!
Dilaudid works for me in just a few doses, without the "overwhelming
heavy/dizzy" feeling I get with Morphine that sickens me more. Using
Zofran, Bendryl, and Phenergan can often work wonders when combined. GET
INVOLVED IN PROMOTING AWARENESS of this RARE ILLNESS...I am placing medical
fact-sheets in all my local Medical Community, Emergency Rooms, Paramedics,
you name it! And I just came home on the 7th from my last episode. I'm 42
and am still "interrogated!"
I'm 27 an I've had this for seven years. For yearsdoctors thought I had
acid reflex, and when their antacids and diets didn't work they thought I
was crazy for not complying to see a and psychiatrist. Plus when I was
twenty I was diagnosed with CKD and the vomiting affects my kidneys. I
really think I have CVS, it's the only explanation. I'm so glad I'm not the
only one. Watching you was like looking in the mirror.
I am so sorry for your suffering. I do want to thank you for posting this.
I had never heard of CVS until today and my brother has been suffering with
these symptoms for 2+ yrs, in and out of er and no one has mentioned this
syndrome. I've been researching all day and this fits him to a T. Thx for
showing what u go through. You are helping so many. Hope you're feeling
better these days. God bless you
Greetings, i think i was sick the same night , i get episodes about once a
month, i have heard about using CoQ10/L-carnitine suppliments to aid
mitocondrial energy absorbtion, i dont reccomend pain pills, as this
requires as much energy as you can muster up.Props to your Girl for
understanding the condition. drink pure water and get well bro
Hello I hope you are feeling better. My son has this disorder as well. I
was just wondering when did it start for you and what meds do you take? My
son currently takes cyproheptadine it is working really good for him. I was
going to suggest you try that if you haven't it has worked wonders for him.
YOUR WIFE WAS SO SWEET..I HAD NO IDEA IMETREX WAS USED FOR STOMACHE ISSUES
TO OR IS THAT FOT THE NAUSEA?..I KNOW ZOFRAN ALL TO WELL MY OLDEST SON WAS
ON IT FOR A VERY LONG TIME WHEN HE HAD CHEMO AND A BONE MARROW TRANSPLANT
@balldrips I get treated like a drug user too when i go the hospital. They
don't understand that all I need is like for shots of morphine for my
nightmare to be over. I just wish there was a cure.
Your wife is a trooper. I've been dealing with it for so long that my
medical professional wife seems to think it's "normal" and sort of lost
compassion for me while having episodes.