This is a my second v-log on this subject. You may know me for beauty and fashion but I am living with R.A and this is my story. Enjoy mini snippets inside my ...
I've been suffering with this pain since i was just a kid!I remember those
days when i was sitting down in my house playing like any kid and in the
next minut i could not got up because of the pain in my legs....it was
horribile!The pain was so intense that i used to pull apart my legs with my
hands little by little so i could be able to get up!It was taking me a good
few minutes to feel normal again.Now as an adult i deal with excruciating
pain in my limbs and my legs only when the weather turns freezing cold,but
any than that i cannot complain because in the summer time i feel great and
i'm pain free!I'm 35 years old now but i'm afraid thinking about those
years when i'm going to be older.....because i know that i'm going to be a
lot worse,maybe paralyzed with pain and not be able to do much!Anyways
Epsom salt had given me relief for now.I hope you'll feel better soon and
stay strong you will beat this,you are much stronger that this pain.God
bless you.
I have RA it started severely when I was 18 it can be agony I was in a mess
before I got diagnosed and had to be hospitilised because I couldnt move at
all. I have lost alot of movement in both wrists too, my left is worse. My
neck has slipped loose which is the scariest part because if they fuse it,
it could go badly wrong im waiting to see a neuro surgeon. Thank you for
sharing your story with me, iv not come across other young people living
with this illness. Things are really hard for me at the moment im in alot
of pain everyday.
I will pray for u cause I know pain too.I have a right leg above the knee
amputee phatom pain can be sometimes.There no pain med. really to help it
from what doc say because my nerves were cut.Because I been the wheelchair
so long because I was having trouble with my hands.Now my hip and back
bother me.But I been eating good but want to do better.Get this body movin
again ex is hard with one leg and in the chair.I got do something thou have
u ever heard the heart diet lose 14pds. in 7 days.
I have been doing research regarding pain due to my illness. I have a
Chronic Pain Syndrome in my limbs. I have recently found two things that I
have wanted to try & I think they may benefit you with your RA. If you
would look them up & see if it is something that would interest you & help
w/your pain. The 1st is the Tommie Copper compression sleeves. Maybe the
wrist one would help you. Also Olive Leaf Extract I have heard helps w/RA.
Maybe U could google both & C if either of these work.
Thanks so much for this video! I have my first appointment with
rheumatologist next month. I was really upset when I was first diagnosed
but I'm coming to terms with it now at least I have an explanation for the
pain and swelling I struggle to dress and undress even doing my hair is a
pain as I haven't got much movement in my shoulders but you've really
inspired me to know that it's possible to continue a pretty normal life.
Thank you for sharing. I have RA and cannot walk in the mornings. Bless you
for getting up early and working out. My pain, swelling and stiffness won't
allow it. I miss spin class! I used to teach ballroom dancing but can't
anymore. My life has changed dramatically. I give myself a shot once a
week, take 6 pills Methatrexate every week and do prednisone as needed with
no relief. Keep up the good work. I wish you well.
Wow at short term memory issues with the steroids. Lol, you do really well
with curbing your treats as far as I see on Twitter. OMG at all that
exercise so early >_< that's tough. You have a very determined personality
Chastity which no doubt helps a lot but buy oh boy, such a daily grind with
the diet, medication and pain, I can imagine this must mentally take its
toll from time to time. Pheww-weee. I had no idea.
I am happy for you that you can still move. I took methotrexate and my hair
fell out. I've been on prednisone for 14 years and have gained so much
weight. I can barely walk any more and at times the pain is so overwhelming
I ask God to bring me home. I am all alone raising two kids and have no
friends or family to help. Noone cares or understands the pain.
lol, I have to excercise or my body will have aches from no moment plus you
get leg cramps from steroids if you sit long periods especially driving in
the car, the worst. It does take a toll at times but I just work through
the pain or don't talk about it especially in the beauty/fashion world.
They will think you can't do your job and I can.
I would love to know if you look into these to things & if you decide to
try either the TC compression sleeves or the OL extract. If you do I would
love to know how they work for you. I'm definitely going to get some
Seagate OL extract cuz I heard it's the best brand to see if it will help
me elevate my pain. Thx for sharing. Goodluck.
I am 21 years old and I am also living with RA. I can really relate to your
story !I hope you are doign better. Maybe we could communicate and
encourage each other some day I'm sure we both need someone to understand
what we are going through.
Lots of love, take good care xxxx
Just in my wrist. It doesn't get worst for me in the cold the meds do a
great job but if I over use my wrist it aches a bit more. The predsnisone
is the only thing that controls the pain at the moment but I will be off of
it by summer so not sure what's going to happen then.
Your video is great with lots of info about your day. I have just been
diagnosed with RA and your video has provided me with very valuable
information. I love exercising also -- keep up the good work! Looking
forward to seeing other videos. Take care!
I'm curious does pain and swelling worsen in the colder months or does the
medication alleviate that problem? And also is the RA confined to your
wrist or is it throughout your body? SO interesting, thank you for the
insight, seriously.
Wow, thanks for sharing your story. I pray that you stay blessed as well,
pain is a struggle but being able to keep postive and trust in god gives
you everything.