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How To Draw A Human Heart

Produced by Emon Hassan for Narratively's "Art in Strange Places Week" (March 13, 2014) //narrative.ly/art-in-strange-places/how-to-draw-a-human-heart/ ...

Marfan's Syndrome

Michael LaCorte, MD Pediatric Cardiology.. Dr. LaCorte served as Chief of Pediatric Cardiology at North Shore University Hospital from 1981-1991 and is ...

User Comments

marfaned commented on 03 Feb 2010

All Marfan's don't show all the features. Also, the variation in severity is large. (see my post above) The diagnosis is still a clinical one, as blood tests by themselves are not definitive. The drug regimen chosen depends on many factors including your ability to tolerate side effects, other drugs you take etc. Typically, Losartan or Telmisartan 25/50 mg per day, sometimes combined with 25/50mg of Metoprolol to control some rhythm problems if any. Your Doc. will decide the best one for you.

wardyman90 commented on 05 Aug 2009

Oh and as far as im aware my parents havent got it. im 19, used to run many miles in cross country even with Asthma and never experienced any serious problems with my breathing, when i did it was because of my asthma. So far all my life i have been able to do what ever i want (phyically) e.g. playing football, running, drinking/partying and my heart and lungs seem to be getting on fine as ive had no pain in those areas. Im really worried as ive herd people with this syndrone only live to 40!

IloveBryanDick commented on 11 Jan 2010

My son is 13 and just developed a really bad pectus cardinatum, lost weight rapidly and looks anorexic. He has always had what I thought was rheumatic pain in back and legs and I noticed from birth a high palate in his mouth. he says he has heartburn and asks for antacid tablets. Is it normal to be fatigued? He 's sleeping all the time and misses school due to tiredness. I have been to doctor loads of times who just says its ok the chest happens to lots of teen boys. Should I go to hospital?

Glenn Zammit commented on 09 Apr 2009

I am a 24 year old boy from a tiny island in the mediterranean called Malta. I was diagnnosed with marfan since I was a baby Unfortunately there is no permanent cure for this disease but for those that they have heard that many of the people with marf\an have a shorter lifespam I can say that we can also live till 70 or 80 years if age. What I hate in this syndrome is that for many people we are considered as total mutants and that hurts me alot because apart from marfan I am a normal boy

praisejehovah commented on 06 Feb 2009

i have been diagnosed with Marfans, a distant family member has similar symptoms, he is taller than me by a few inches, and has stretchmarks. I don't have dilitation of the aorta, I have that 'wrist sign' but not the 'thumb sign', the high arched palate. I think I;ve got the dural ectasia but no lens symptoms. Is there any Drs on here? What is the blood test, does it look at chromosome 15? or does it measure levels of TGFBeta what beta blocker do people take and what are therequirement

marfaned commented on 03 Feb 2010

I'm 48 and have had 6 surgeries starting age 10. My dad checked out @46 but these days heroic surgeries pull some people through to 60. The variability is large, from mild to moderate to severe and even a neonatal form where the babies barely live a month. Fortunately, I squeezed in a medical scientist degree and had a good career so I get very good care. The pain and the quality of life is sometimes unbearable. Living with heart failure ain't fun. I live one day at a time.

Laventine5678 commented on 16 Dec 2010

I suspect that i have marfan syndrome. For some reason, i keep refusing to believe that i have this disease, but i do have all the symptoms. My chest, wrists, long fingers, are just like what he said in the video. i managed to change my shape a little bit by working out a lot, play basketball, all kinds of workouts because i didnt want to be this way, is there a way to get rid of this curse? Should I go to a doctor? My heart seems fine, but i am just not sure anymore

FunnyLooking77 commented on 02 Mar 2011

im assuming everyone here has marfans this is why you came here...well let me tell you....its a form of disability so id advise you to collect SSI as payments, sit back....and do something fun till you die (thats if you ever do) as long as your government thinks you have this syndrome, youll get paid... i know i have for over 10 + years, but ive already suffered a retna detachment, oh well... life lives on....back to porno, then sleep...then more porno again

assezfolle commented on 07 Jun 2008

I've been told i have marfan's syndrome, but I've never had a marfan's specialist look at me (I don't think there's any in my city). I have the thumb and wrist sign, high palate, the eye thing (my optomotrist picked it up), long arms, super flexy joints...but i'm actually very average in height and skinnyness (5ft six, 120pounds)...I'd really want a proper diagnosis, things like this help tho...thanks!

ajk423 commented on 02 May 2009

I am not so sure about the span just being longer than the height. I would say the arm span should be significantly longer than the height for Marfan's to be considered. My arm span is 2.5 inches longer than my height and I know many many people are the same. In Marfan's patients, the arm span is usually at least 10% longer than their height.

lisa dubin commented on 18 Sep 2007

hi! thanks for talking about marfan's syndrome.. not many people know about it. Theres one thing though: with marfans syndrome also comes lung problems, as well as the other problems you talked about, which means that people with marfans have difficulty breathing, and may have collapsed lungs.. thats all! thanks for the video!

anna fongtom commented on 26 Feb 2012

His eyeballs shake like gel, he sees floaters in his vision, he has a prolapsed heart vale, and he weighs no more than 75 pounds at 5'7 tall. He's a hero: He drives like a pro, nobody can beat him on video games, especially basketball video games, he's an excellent writer, a self-taught computer tech.

emurphy66 commented on 14 Aug 2011

Abraham Lincoln had Marfan's. My mom is actually diagnosed as having Marfan's. Everyone on my mom's side of my family(or almost all) die of cardiac arrest. I have long finger, toes, I'm quite tall, I can do both of the signs, I'm near-sighted, AND I have scoliosis. Oh Shit, I have Marfan's. :(

marfaned commented on 03 Feb 2010

Yes, go to a specialist. Fatigue can be a sign of valve problems. This can eventually strain the heart over time and cause some degree of heart failure. An echocardiography (simple, painless, non invasive test) should give the required information. Better to be safe and rule things out or in.

wardyman90 commented on 05 Aug 2009

hmm im not exactly tall but im rather skinny, i can do the wrist sign but NOT the thumb sign. My legs are kinda long but im sure my wing span is not taller than my hight. I havent got flat foot and my eyes work perfectly. Should i still get it checked out? please get back to me someone.

cozaar33 commented on 19 Feb 2009

Angiotensin receptor blockers HALT aortic diliation. For some reason this is not getting the press it deserves.. Forget the beta blocker it wont do jack. The ARB is what will do the trick... Telmisartan is the best one..cozaar is one of the weaker ones but the most used

charlieclown commented on 19 Oct 2009

marfans is considered a multy system disease like multiple schlerosis and as such qualifies for social security disability or medicaid. That should help pay for your medical test that a marfans patient must get or they are at risk of sudden death and life long pain.

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