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Nystagmus ou Videos

Nystagmus spontane

le nystagmus est un mouvement d'oscillation involontaire et saccadé du globe oculaire. Le nystagmus est une perturbation de la coordination des muscles de ...

Nystagmus vestibulaire

Nystagmus vestibulaire uploaded by Cours De Médecine, Cliquez sur j'aime et partagez avec vos ami(e)s . + de videos ou Articles sur //sh.st/v0qZh.

nystagmus problème oculaire /qu'est se que c'est / vivre avec / témoignage by team nara

Bonjour à tous aujourd'hui ont se retrouve sur une vidéo pour parler d'un problème oculaire qui se nome "Nystagmus" moi même atteins de cette maladie j'ai ...

User Comments

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Milène Lajoix commented on 03 Oct 2015
Et ca a beaucoup changé les choses ? Tu penses que ça vaut le coup ?
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team nara commented on 08 Oct 2015
+Milène Lajoix bof c bcp de douleur et contraintes pour pas énormément de résultats du moins à l'époque visiblement c plusieurs fois opérables
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Milène Lajoix commented on 01 Oct 2015
D'accord, je me suis faite opérer d'un strabisme l'année dernière et le chirurgien a déseinséré des muscles puis les a réinséré, je n'ai pas pu ouvrir les yeux pendant 3 jours, je pense que ce n'est donc pas la meme opération mais portant je ne trouve rien sur celle dont tu as parlé sur internet et mon ophtalmo ne m'en a jamais parlé...
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team nara commented on 02 Oct 2015
+Milène Lajoix Je crois que se n'est pas encore très communs comme opération c’était mon opticienne de l'époque qui m’avais dis qu'une autre de ses cliente c’était fais opéré d'un nystagmus à Rouen du coup ont c’était renseigné et y avais plus qu'a mais j'en avais jamais entendu parler avant non plus même aujourd'hui d'ailleurs
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Milène Lajoix commented on 29 Sep 2015
Salut ! J'ai 15, je suis en 2nd et j'ai un nystagmus, je pense à peu près au même niveau que toi.... Je vois "assez" bien de près mais pas du tout de loin, je crois que j'ai une vision de 3/10 en moyenne... J'aimerais bien parler avec des gens atteint de ce problème pour voir comment d'autre gens le vivent. Est ce que avec l'opération du nystagmus on peut ne plus en avoir du tout ? Tu as récupéré beaucoup de vision ? Et commet as tu gèré l'école pendant 1 mois ?! Merci beaucoup !
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team nara commented on 30 Sep 2015
+Milène Lajoix Salut , alors je ne pense pas qu'une opération quelconque puisse le retirer totalement , l'opération que j'ai subit a consisté à resserrer un peut les muscles des yeux ce qui a eu pour effet que je mette moins ma tête sur le coter et que mes yeux bouges moins aussi du coup sa a un peut améliorer ma vision de loin mais rien de bien violant non plus et je l'ai fais pendant les vacances ^^
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daniel pagenel commented on 14 Aug 2015
Merci à toi pour ton témoignage. Il existe des nystagmus (le mien) plus importants. En effet quand la position de "blocage" est dure à tenir la vision est impossible. C' est tout de même très handicapant dans la vie. Opéré 2 fois sans succès. J'ai 51 ans et il est définitif. Bravo pour ton enthousiasme en tout cas!!
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team nara commented on 15 Aug 2015
+daniel pagenel Merci^^
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lasfar Fatima commented on 28 Apr 2015
stp moi aussi j'ai une nystagmus et j'ai des problème avec sur tout qu'on je sorte au solier jarrive pas maim a ouvrière mes yeux ce que je veux savoirs si quoi les solution proposer au quelle type du lunette que tu utilise
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lasfar Fatima commented on 30 Apr 2015
+team nara tu voix combien /10 ?/10
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team nara commented on 30 Apr 2015
oui c autoriser mon médecin étais même d'accord pour que je le passe sans soucis , mais je sais que moi même ainsi que tous ceux a qui j'ai pus parler ne le passe pas ^^
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lasfar Fatima commented on 30 Apr 2015
+team nara merci d'avoire me répondit stp et pour le permis de conduire et ce que ci autoriser pour les nystagmus au non
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team nara commented on 29 Apr 2015
+lasfar Fatima Pour le soleil ou la lumière en général je ne suis pas persuader qu'il y est des solutions moi j’utilise des lunettes de soleil a ma vus traditionnelle

Congenital Nystagmus

A case presentation of congenital nystagmus. Treatment Plan and Goal are presented by Dr.Sarbjit Singh.

User Comments

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Seeker17 commented on 03 Jun 2011
@kostaszoi ok first thing is i do also ha nystagmus and have also had the operation but my did not work it slowed the movement of my eyes but the lowered my vision and i could not open my eyes for 1 week, i will tell you this you realy learn to be thankful that you can see at all!!!! i was also informed that up untill the age of 10 there is a slight chance that you can go blind forever!!! i am 16 now and i do haver my drivers licence, i was only able to do so by getting a letter from my doctor
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Nealey commented on 15 Dec 2010
I have 3 conditions... nystagmus, stigmatism and (if the spelling is right) albinoculism. Doctors and optitions say theres no treatment. I dropped out of school coz i fell behind on all my coursework leading up to my exams and i didnt have any confidence in myself. Iv never come accross any1 else with the same or similor conditions, My eyes go blury and i have started to notice things moving slightly when i try and focus and im paranoid about what people think. Dont know why its just shit
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Burngobingocaller commented on 05 Sep 2010
I have Nystagmus (although no way near as bad as this) I cant see my eyes moving when i look in the mirror, even though i have been told its happening. I have been told that i look out of the corner of my eye when focusing on things and i have incredably bad vision (I cant focus on anything further than 30 cm away) Other than that i dont have any problems at all (Allthough i beleive it has caused my eyes to become hyper sensitive but maybe not as my dad has this but not Nystagmus )
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Nealey commented on 11 Sep 2011
@Vilmacalewaert you cant tell sometimes but when you try focus it is pretty hard to. yes the eyes can tend to get tired depending on what Im doing that is. Its hard to look people in the eye because I don't think both of them focus on the same spot at the same time if this makes sense. I don't really feel my eyes shaking but I guess that depends on how bad they shake with the condition. Hope that helped, it is pretty hard to describe so did the best I could. N
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Taylor McDonald commented on 05 May 2010
i have that as well. I am considered legally blind and the doctors told me I could never drive and quite frankly i believe them. My vision isn't all that great and I can hardly read anything on the road. I am 20 years old and tired of having to rely on people to take me places, so if there is something that could improve my vision by at least a little bit i want to talk to the doctor that is performing this surgery lol Best of luck to all y'all though:)
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Brett Ryan commented on 14 May 2011
I am 32 and dealt with this all my life. I have nystagmus, underdeveloped optical nerve, no peripheral vision, left eye is almost blind and turned in and astigmatism. I can't drive due to these conditions. I not only wish there was a cure for just one of my conditions, but I wish the govt would give me assistance so I don't have to walk to work for 5 k/m every day in the cold :(
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Daniel Wang commented on 28 Nov 2010
great video and thanks for sharing, i just came across the topic in my neuro rotation and wanted to see how it actually presents.... although, my only.... not complaint..... but i guess the only thing that weirded me out was the choice of music, hahaha, although, i guess choosing a rock song would be been just plain incongruous.... again thank you very much!
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ForbiddenModz commented on 28 May 2012
I was born with this also just afew months ago i tried to take my life because of it. From all the bullying and hate at school i just couldnt deal with it anymore. my main goal was to get my drivers license which i have partially succeeded with but from all the bullying and stuff i have huge anxiety issues and its really unfair.
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Vilma samayoa de calewaert commented on 24 Jul 2011
My 16 years old son with down syndrome has nistagmus. As I see there are many people with it. My question to people who has nistagmus is: How clear do you see, can you focus normally or there is an alteration in visioning, do your eyes become tired? what is the sensation you feel? Sorry to ask but my son cannot express himself.
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quinny44 commented on 08 Oct 2011
@Vilmacalewaert you dont feel anything at all, and it looks the same as anyone elses vision, as when you have it from birth the brain learns to see even with the movement. Sometimes there are problems focusing and sometimes when tired or stressed it becomes harder, but other than, you can barely feel anything.
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quinny44 commented on 08 Oct 2011
@albertescamilla question: how much of an idiot are you? you clearly have no respect for anyone living with condition that they inherited...would you say to a clip of a kid in a wheelchair 'well, soemtimes people can get drunk and fall over and that causes loss of leg use'? no, you wouldnt, so have respect
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JollyMe08 commented on 02 Aug 2009
You sound exactly like me, except I have no actual talent in anything. I also do not have curly hair, so maybe you aren't much like me after all... I just wanted to tell you, do NOT be ashamed of your curly hair. I absolutely adore curly hair (maybe it's because mine isn't, lol) but I think it's beautiful.

Examen d'un vertigineux : Manoeuvre de Dix et Hallpike modifiée 回顧令人目不暇接：機動迪克斯和Hallpike修改

la manœuvre de Dix et Hallpike, qui consiste à reproduire le vertige en basculant le patient vers le côté déclenchant (le sujet, assis jambes pendantes, tête ...

Vidéonystagmographie (VNG) - partie 2

La vidéonystagmographie est une technique qui permet l'exploration très précise des fonctions vestibulaires (et de plusieurs systèmes) pour évaluer différents ...

Vidéonystagmographie (VNG) - partie 1

La vidéonystagmographie est une technique qui permet l'exploration très précise des fonctions vestibulaires (et de plusieurs systèmes) pour évaluer différents ...
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