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Can I have laser eye surgery if I have nystagmus involuntary eye movements?

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Nystagmus

WATCH PART TWO HERE: https://www.youtube.com/watch?v=Bii_LUKiAm4 Nystagmus: involuntary eye movement This is in real-time. This is a video of me to ...

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Gio Garnada commented on 22 Feb 2015

I saw this on a patient, who was on stroke alert, but it went away after we gave her meds, not for the nystagmus though. Idk if this is offensive, but it's kind of fascinating. I can't voluntarily move my eyes that fast.

Kimberly Black commented on 08 Mar 2015

+Gio Garnada Not offensive at all. I've read that strokes can cause Nystagmus (as well as a myriad of other things).

kca741979 commented on 07 Feb 2015

Question for nystagmus patients. Do you all drive a vehicle? I'm 35 years years old, I have had Nystagmus since birth, along with ambyopia (one lazy eye). Those two things are in addition to having myopia, which is only moderate. I've also been classified as a potential glaucoma case down the road. My visual acuity without glasses is 20/200 In both eyes, and corrected is only about 20/50. I tried driving in my teens and it was so hard to see road signs. I didn't try again until 2013, and couldn't make out a sign until it was maybe 30 feet away...obviously not good. Driving in sunlight was tough just due to the brightness (sensitivity to sunlight is somewhat common for nystagmus). So, do any of you drive, and does anyone have a similar trio of conditions?

Cherry Pepper commented on 12 Oct 2015

+kca741979 Nystagmus, aniridia, and cataracts that have been removed. Corrected vision is 20/200. Even if your distance vision can be corrected to the legal minimum, my understanding is that nystagmus is a no-go. I never even thought to try to drive a car with these sight factors. Unfortunately we'll need to wait for the autonomous cars.

Katherine Callow commented on 29 Sep 2015

Hey Liam, To answer your question, I did have the surgery and it went well. My right eye improved from 20/80 to 20/50 (so far - there may still be more improvement). My overall vision has gone from 20/30 to 20/25 and I don't have as much of a null point anymore. And I'm really close to getting my drivers license. I feel way more comfortable with it than I did before, so I would say it was successful

faith Ruiz commented on 29 Sep 2015

I have nystagmus, astigmatism and myopia . I was born with it and I've had two surgery's when I was a baby and right now I'm 13 . they say I can possibly drive but I thing they were trying to get my hopes up cause I've seen other people with similar situations and they can't drive . and I really don't like to be independent soo

Liam C commented on 21 Aug 2015

+Katherine Callow Hey Katherine, i also have nystagmus and astigmatism. I'm just curious, if you have had the surgery, how did it go?

Helèn nìraM commented on 01 Jun 2015

+Katherine Callow I thought they can't do any surgery for that. Maybe your problem is related to a few nerves and muscles? Mine is light, but it seems that there are no medical solutions at all!Anyway I find it nice on a girl with such a cute face and smile :)

Katherine Callow commented on 15 Feb 2015

I have nystagmus and an astigmatism and I'm not driving right now - technically I could legally do it with glasses but glasses never really helped me. I'm actually getting surgery in a couple weeks that should totally correct the nystagmus. I'm hoping that after that I will feel more comfortable doing it. If you have any questions about the surgery I'm getting let me know - it's had some really promising results.

Kimberly Black commented on 07 Feb 2015

I've been driving since I was 16. Although I can't legally drive without my glasses or contacts, but I think that's everyone who wears them.

Hmcos commented on 30 Dec 2014

I recently noticed my moms eyes move like this but she get really dizzy when it happens. Do you get dizzy?

Kimberly Black commented on 01 Jan 2015

Nope that at all.

mont blanc commented on 08 Dec 2014

I meant do u see the world fully and properly? I mean read, write, play , watch tv etc with ur eyes? My son is only 5 months old. N he is diagnosed with nystagmus. Congenital ofcourse. So i am very much worried and tensed for him.:(

Kimberly Black commented on 14 Dec 2014

I can do many things and live a full life. See the second nystagmus video I made to see it under some conditions. As always, I am more than willing to talk to you more about this if you ever want. Best wishes.

mont blanc commented on 02 Dec 2014

Do u see properly? Plz answer.

Kimberly Black commented on 08 Dec 2014

I don't know what you mean by see properly, but yes?

What is Vertigo & Nystagmus?

Have you ever wondered what nystagmus feels like? Our latest video, "What is Vertigo & Nystagmus?", is a short explanation of these symptoms where we show ...

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jonesgreg305 commented on 26 Aug 2015

Hi my nephew has had episodes like this for years now and i wanted to know if unilateral hearing problems cause left or right beating nystagmus what might be the cause of upbeating nystagmus?

wanda theresa commented on 11 Oct 2015

Today I found out that I have intermittent nystagmus. Are there triggers for this? I know certain things can trigger a person to have seizures. Is this the same with us?

alsandro fai commented on 16 Jul 2015

i have vertigo..a recent episode at work while driving..its easy to explain to co- workers but hard for them to grasp..thanks so much for this video

Roni & Dusty commented on 19 Jul 2015

As a person with horizontal Nystagmus, I can say that, it is VERY hard to describe, but you guys put it very very simply.

Sydney Genette commented on 16 Nov 2015

All I can tell you is that I have been living with nystagmus for 13 years and that is nothing of what it is like

vinit jadhav commented on 16 Jun 2015

Horizontal Gaze Nystagmus

Garrett T. Ogata, Las Vegas criminal defense attorney, discusses the Horizontal Gaze Nystagmus test used by police officers when attempting to identify alcohol ...

Congenital nystagmus

This is a condition where a persons eyes move back and forth. I don't know when they are moving I don't feel it I can still see straight I can NEVER drive because ...

User Comments

James Turner commented on 31 Jan 2015

I'm a sophomore in high school now, last year I met a guy named Josh, & I couldn't understand why his eyes moved like that, Josh was 16 I was 15, he was a sophomore but he looked like he was 13 and but he didn't go through puberty yet, people would pick on him and he didn't have a lot of friends so I stuck up for him and was it with him every time I saw him at lunch or breakfast, I could tell he was very insecure by the way he talked and presented himself, he would never answer anything seriously but I always tried to stick up for him and make him feel comfortable, I would ask him what his eyes are doing and why they move because I saw an episode on true life on MTV with a guy who had congenital nystagmus, but just now after looking it up and watching your video I understand it more. Coming into my sophomore year I guess Josh left my school and I have no idea where he is now but I wish I could see him again, and I will always stick up for people with this.

Angie Beaver commented on 24 Jan 2015

Hey girl. Its awesome you did thos video! Very informative. My son was born with nystagmus and he is almost 2 now. The opt. Said his vision appears to be very well. He notices birds and planes even! They have done alot of tests and only thing they have found was that in his brain, he has a little more of the white substance on his brain rhan normal which could possibly cause delays but dont know the cause. He does not seemed bothered by it so far but I am worried for whats to come. However, your video has been VERY helpful!!! Thank you for spreading your knowledge and sharing your experiences, I think we all are very thankful :-) Keep you chin high and good luck in college....dont know how old video is so you may be out of college lol. Thanks again girl!!!

Mariyam Bounoir commented on 09 Apr 2015

...and I thought I was the only one!! Is it still flaws when I'm inlove with it :P? I was born with nystagmus and no doctor have ever known why were my eyes shaking until now which is stupid. I just came by your video and this is my first time to know that i wasn't the only one. I never get jokes or stupid questions about my eyes, people around me actually find it special since I'm the only one they've seen having it lol. They often relate to anime which doesn't bother me much as I like anime xD!

Jorge857 commented on 29 Jun 2013

I have nystagmis, if you feel you need someone to help you with some situations with your son, hit me up. What I can tell you right now, is that you have to understand how severe this condition is. What I mean is that when He tells you "I can´t see it", don´t be surprised. We really have to get up close to things to be able to see, but don´t worry. Personally, I got my college degree last December, I have a job and I can travel by my self. So don´t worry, just support and love your kid. Peace.

dazzling glitter commented on 06 Aug 2013

Thank you so much to for posting this. My son was born with congenital nystagmus. He will be two in October. I feel like I have a million questions. :) and I don't know where to begin. I've looked at so many you tube videos, and this one has been very helpful for me. Do you get bullied? I know what you mean about the million questions. I can't imagine what you feel. I get asked by so many strangers if my son is okay etc. And that breaks my heart. So I'm so afraid of what it will be like for him.

Willis Graham commented on 04 Apr 2013

Hi, my name is Willis. Im 28 years old now with congenital nystagmus. I live in Southern California, and have never been able to get a drivers license. I have two kids. So not being able to drive and having two kids living out here has made my life very difficult. I've researched eye muscle surgery that may be able to correct my eyes enough to be able to drive. Its a doctor in Ohio, Dr. Burnstine. Have you heard of it? If you have or have any information, please post or e mail me willis836@gmail

Martin Eicher commented on 13 Mar 2013

My fiance and I had a baby on 6/14/2012 he is growing up and we noticed shortly after birth his constant eye movement.We took him for his checkups and the doctor said O he will grow out of it.And now at almost 9 months the doctors are starting to be concerned. Anyway, what will life be like for him? Anything you suggest to help him? I have noticed he likes screens (computer and phones) and sometimes I wonder about his depth perception. (I have cerebral palsy, so I kinda understand his life) ty

Joel Nichols commented on 08 Sep 2013

Thank you for making this video!! We are trying to figure out what's going on with my four yr old daughter. Since birth she does have chronic sinus problems and ear infections. She's had two sets of ear tubes she had her sinuses flushed and adenoids removed. My husband and I have thought maybe she has vision problems but not worried enough to get her formally screened. For the last two months I've noticed the veg around naptime she tells me she's dizzy. Then she sits up in her bed & either

chelle67 commented on 26 Mar 2013

Hello :) My Daughter was misdiagnosed with a degenerative eye disease as a baby, For more than 15 years, we lived with the fact that our baby would lose her sight. Great news this isnt going to happen! yet still cannot get over those lost years of worry and unhappiness :( ... She is now 23, has a slight nystagmus in her right eye. She has had 2x surgery to correct a squint, One of my reasons for posting, was to ask if you or anyone reading, had a head nod, to match their nystagmus, ?

livelovedieandrip commented on 08 Aug 2013

the best advice I can give is don't be afraid to tell him to stand up for himself. yes I got bullies throughout elementary and middleschool. another thing is tell him that what ever help he is offered throught school, take it, utilize it and don't be afraid to stand out. in FL they have a place called DBS that gives me equiptment to help me see. I always am afraid of what people will think if they see me use it and it prevents me from helping myself. don't let him do that.

Laura Gayusi commented on 06 Oct 2013

Hey Girl , I have congential nystagmus too , I see straight as you said and I do not feel the movement I know it cannot be cured , sometimes I feel so depressed because of people questions or reaction or the way they deal with it , personally I accept myself because I know no one is perfect , I need to make things larger to see them well but sometimes it embarrasses me ! does every one who has nystagmus can not drive? thank you for sharing this video. It helps me a lot ,

mondobello commented on 06 Sep 2012

Are you frickin' serious? They ask you if you're having a seizure?! In 30 years I've never had that! But wow. Good for you making this video, I empathise and sympathise with the struggles you've faced having C.N. At your age I wasn't even remotely as open about it as you. It's taken me a long time and I'm still dealing with it, but a lot more confidently. Would love to hear more from you. I made a video response to someone else's vid, I'll send you the link.

livelovedieandrip commented on 11 Sep 2013

I am sure if you asked a doctor they would know right away whether she does or doesn't. Its pretty noticeable. I'm not sure if an MRI or CAT scan would detect it. If her eyes are moving back and forth, and its often its a sign that she might have nystagmus. And yes I get dizzy but that's usually at the end of the day or if I have worked my eyes to hard. If you go to an opthomologist they can tell you if she has it or not

Shelly Garcia commented on 06 Aug 2015

I can do this voluntarily. I have a connective tissue disease, the collagen is poorly made and makes the collagen very weak in ligaments, tendons, and muscles. I can do this back and forth VERY FAR.....and fast. It's been a party trick. I have some neurological issues in the cerebellum as well. I am sorry you cannot drive, hope you are doing well, since this is a 3 year old video. Take care ;o)

livelovedieandrip commented on 08 Sep 2012

honestly, regardless of the fact that people are ignorant assholes and have made me feel like such an outcast and loner ..i love the color of my eyes it is the upside to my problem. i would sit in school and people would as why my paper is so large and i used to try to explain to them why but now it comes down to..."because i am more bad ass then you :)" its a great way to get them to shut up lol.

James Cox commented on 09 Oct 2012

Hi I have nystagmus and I was also born blind I had the correction surgery in July have u had it how did u find the results I am also due to start new drugs just after Xmas that will improve my far vision so fingers crossed on me driving a question I always get is ( is everything moving for u ) and do u find it restricts u in more then the not being able to drive

BeneficialBunhead commented on 19 Sep 2012

Sorry I pressed send to early! And I can't delete the previous comment, sorry! But I have congenital nystagmus too, and was also born blind. But I've had many surgeries over the years, and I just passed the eye test to get my learned, although I can't drive at night. I've never known of anyone else no has it so it's pretty cool to know I'm not alone, thank you!!!

shelbyskaterdude commented on 29 Jul 2015

I have the same problem and was born blind like you and then somehow was able to see then had surgery to have the muscles tightened in my eyes. I've worn really thick glasses my whole life and it seems to help my eyes to focus. I even drive and it seems to help, I appreciate you posing this video and being brave enough to share with us about your eyes.

livelovedieandrip commented on 09 Oct 2012

there is only one surgeon in the world that can help with nystagmus and i am not willing to risk losing my eyesight i have realized recently that my eyes have gotten worse and i am starting to see things moving back and forth and yeah i get annoyed that i cant drive it gets to me sometimes but there are some advantages to having my eyes like this

Joel Nichols commented on 08 Sep 2013

Rolls her head around in circles or does the same circular motion from the waist up. Her pupils look dilated & I have begun recording her eye movements. The ENT said these episodes could be migraines or we could sedate her for an MRI/CATScan. Would either of those detect congenital nystagmus ? Do u experience dizziness?

Nystagmus Eye Surgeries

Taking about my eyes and eye surgeries. If you have any questions just ask! Twitter: @snapshotshawna Instagram: snapshotshawna.

User Comments

Mike Smith commented on 14 Nov 2015

I was just wondering did you have footage of nystagmus before the surgery

Snapshot Shawna commented on 14 Nov 2015

I'm sorry I don't. it wasn't something I thought about. That would have been helpful to those wanting the surgery.

Mike Smith commented on 10 Oct 2015

hi I'm 37 year's old and I have nystagmus. Just got back from my eye doctor today and I'm seriously thinking about getting my eyes aligned just wanted to know would you highly suggest it are would you rather I did not

Snapshot Shawna commented on 20 Oct 2015

It depends on if you're comfortable with how your eyes are now. I wasn't comfortable and wanted my eyes to align and not shake so much. It was beneficial to me. :)

Gloria García commented on 12 Jul 2015

Thank you for sharing your experience. It helps to better understand this condition, and most important your personal perception of things.

Snapshot Shawna commented on 12 Jul 2015

+Gloria García Thank you for watching, and I'm glad you enjoyed it. :)

KljajicAjdin commented on 22 May 2015

Hello, I was born with Nystagmus. I'm 29 years old and my career goals were always to become a meteorologist on TV, however with the nystagmus present took a toll on my vision towards the prompter. My nystagmus is not that bad, however you can see my eyes move right/left if you look me close enough. 99% of my friends never really knew, only a couple of people noticed my nystagmus. Last Tuesday I decided to get a surgery (muscle surgery) (i'm still following my dreams to become a met on TV). My doctor performed a surgery only on my left eye, that was upon his decision to do one eye at a time. I'm not really sure how this works but I went with his decisions. Im still recovering with the redness and itchy/uncomfortableness in my eye. After the surgery I noticed a drastic change in my eye, it stabilized significantly, however now day 9 it varies. My nystagmus seems to have returned a bit. Supposedly the recovery time can vary from several weeks to several months for noticeable change. I'm expected to get the second surgery done in June. I'll keep everyone posted over the next several months how everything evolves. I hope there are some folks in this group that have had the surgery. I'd like to hear about your results. I think the reason you've been having problems is that you are fairly young, and still developing. So my doctors in Germany recommended to wait until i'm a full adult. Just my opinion, however you look really good... :) It's not noticeable.. Good luck to you! Thanks, Ajdin-Aiden Kljajic

Snapshot Shawna commented on 12 Jul 2015

+KljajicAjdin I haven't heard of doing one eye at a time, but the last two surgeries were done by the same surgeon. I am not happy with my last surgery, my left eye is a different size and shape from my right one now. Makeup is a pain in the butt to apply since each eye is different, but I know since you're a guy that aspect doesn't matter. My left eye wanders more because I can't see out of it so I can't control it. When I had my third eye surgery (I was 15) I was so unbelievably happy! They looked the tiniest bit cross eyed at first because they were healing. I can't remember how long they took to heal, but that is when I felt the most "normal." Eventually they started becoming worse and I had to get the surgery on my left eye. It's five years later since the last one, and I can tell I want another one. I don't think will happen since it's "cosmetic." I hope your surgery goes well, and I'd love to hear about your story. Thank you for your comment!

brandon tillman commented on 15 May 2015

you look amazing!

Snapshot Shawna commented on 12 Jul 2015

+brandon tillman Thank you, that's very nice of you!

DUI Sobriety Tests Explained: the Horizontal Gaze Nystagmus Test

San Diego Criminal Defense Attorney Benjamin Theule explains what police officers are looking for when they make suspects follow their finger or a pen at a ...

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